A newer less tested way is also the Oncotype DX for DCIS. The Van Nuys Prognostic Index (VNPI) is one way to calculate your risk of recurrence without radiation. Not all DCIS patients need radiation and taking tamoxifen is also controversial. Thank you for reading my story and please let me know your experience with tamoxifen. I’m not looking for a doctor to say I don’t need radiation or Tamoxifen but rather give me statistics. My instincts are telling me I’m being over treated. So, being that I live in San Francisco and UCSF is in my backyard I’ve decided to get a second opinion from Dr. He made no mention to the horrible side effects of tamoxifen. The doctor did not give me any options or statistics, instead he referred me to radiologist oncologist for radiation, gave me a prescription for tamoxifen and told me to see him in three months. When I left the oncologist office I was left thinking I had no choice. Anyone out there on it and would like to share her story? I’m pre menopausal, have no menopausal symptoms. On I had an appointment with an oncologist who told me the treatment, and my treatment for DCIS was radiation and tamoxifen. I’ve had no previous breast issues other than benign lumps which caused no issues, I also do not have a history of breast cancer in my family. On I was told I had grade 2 DCIS in my right breast. I’m a 46 year old female living in San Francisco, CA. Please “like” our Facebook page or “Follow” to join our Proactive Breast Health Club and receive emails alerting you to new blog posts about DCIS and healthy living. Please explore the website, comment, and share with anyone who may be interested. It also offers support and resources to empower women in making informed decisions as well as in being proactive with healthy lifestyle strategies for breast cancer risk reduction. The purpose of this site is to help alleviate the misconceptions surrounding a diagnosis of DCIS, also known as “stage zero” breast cancer. Carmen Allegra, MD, Chief of Hematology and Oncology, Shands Cancer Center, University of Florida “Strong consideration should be given to changing the phrase DCIS to eliminate the ‘anxiety-producing’ term carcinoma.” – Dr. Laura Esserman, MD, MBA, professor of surgery and radiology at UCSF and Director of the Carol Franc Buck Breast Care Center, UCSF “The time is now to discuss a change in the approach to DCIS. With 60,000+ women diagnosed annually with DCIS (Ductal Carcinoma In Situ), it is estimated that there are over 1 million women living with a DCIS diagnosis.įear, confusion and overtreatment are life-altering problems that many women diagnosed with DCIS feel totally alone with.
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